HDSA Orange County Affiliate
2008 BOWL-A-THON
The Broad Foundation Donates $20 Million
to UCLA Stem Cell Institute
The Eli and
Edythe Broad Foundation is donating $20 million to fund adult and
embryonic stem cell research at UCLA, enhancing a program that
brings together biologists, chemists, engineers, geneticists and
other scientists to develop new and more effective treatments for
cancer, HIV/AIDS, Parkinson's disease, metabolic disorders and other
medical conditions.
More
UCI awarded $27.2 million for new stem cell
building
Irvine, Calif., May 7,
2008 UC Irvine was awarded $27.2 million today from the state to
build a new stem cell research facility that will unify and
strengthen the campus’s fast-growing stem cell biology program and
serve as a hub for research in Southern California.
More
California Stem Cell Agency, Donors and 12
California Institutions Commit $1.1 Billion to Increase the Capacity
for Stem Cell Research in California
LOS ANGELES, Calif., May
7, 2008—The governing board of the California Institute for
Regenerative Medicine (CIRM), the state’s stem cell agency, voted
today to distribute $271 million to 12 institutions to build stem
cell research facilities throughout California. The institutions
committed an additional $560 million from charitable donations and
their internal reserves, bringing the total statewide investment in
new research space to $831 million.
More
HDSA April Newsletter
"Cycle the Heartland for HD"
is a 950 mile bicycle ride
from Clinton, MO. to Pittsburgh, PA. for the 23rd Annual HDSA Convention
(June 6-8, 2008). The purpose of the ride is to heighten public
awareness of Huntington's Disease and to raise funds for family services
and research towards a cure.
Promising new drug targets identified for Huntington's disease
Research funded by the Wellcome Trust has provided a number of
promising new drug targets for Huntington's disease, a neurodegenerative
disease. Scientists at the University of Cambridge have identified a
number of candidate drugs to investigate further which encourage cells
to "eat" the malformed proteins that lead to the disease.
Full article
IMPACTS OF THE 2008-2009 BUDGET PROPOSALS ON CHILDREN
WITH SPECIAL HEALTH CARE NEEDS
On January 10, 2008 Governor
Schwarzenegger released his proposed budget for 2008-09. To address a
projected budget deficit of $14.5 billion the Governor’s proposal
includes 10% budget cuts to most state programs in both the 2008-09
budget and the current (2007-08) budget. The following represents
information about proposals that may impact families of children with
special health care needs.
Full article (Word
format)
Study at UCLA Needs HD Volunteers!
Volunteers with Huntington's Disease or at risk for HD are needed for an
important study at UCLA. The study is funded by the High Q
Foundation (a private philanthropic foundation)
that was established in 2002 with the mission of bringing together
academia, industry, governmental agencies, and other funding
organizations in the search for Huntington disease (HD)
treatments. The Foundation supports numerous projects related to HD,
including basic research, a drug-discovery program, and clinical
studies.
We are asking volunteers to have one QEEG, a simple test that involves
putting electrodes on the scalp and measuring the electrical activity in
the brain. The procedure is non-invasive, painless, and takes about 1
hour. The researchers are looking for biomarkers that could lead to the
development of treatments to halt the disease.
If you live in the Los Angeles area and wish to volunteer for the study
or know someone with HD who is interested in research, please contact
Michelle Abrams at 310/825-0797. We can provide assistance with
transportation.
Huntington’s Disease: Understanding Illnesses of the mind and body
On Wednesday January 23rd, UI Professor Jane
Paulsen, the director of the university's Huntington's Disease Center,
hit the airwaves to educate listeners about the stigmas and research
associated with the little-known genetic disorder she believes deserves
more attention. "I'm just happy that we are informing more people about
Huntington's Disease," she said.
To listen to the entire show, follow the link and download the show to
your computer.
Patent Power
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The Marker
The Marker, a periodical of the Huntington's
Disease Society of America, Inc., is an outstanding source of
information published twice a year, is designed to provide
information and opinion and relay items of interest to individuals
with Huntington's Disease and their families, health care
professionals, interested friends and supporters. Contact HDSA at
1-800-345-4372 [HDSA] to be placed on the mailing list for future
issues of The Marker.
The Real Huntington's Disease
Short video on YouTube about HD.
Barbara's Message on
TETRABENAZINE
Facing Life With a Lethal Gene
Excellent NY Times
article
Tarang Pene is
maintaining a database of care homes that our families have visited
and have either been denied or granted admission to the facility and
the reasons given. Please forward your input on care homes to
Tarang
at
tarang51601@yahoo.com
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