The Huntington’s Disease Society of America (HDSA) is dedicated to finding a cure for Huntington’s Disease (HD) while providing support and services for those living with HD and their families. HDSA promotes and supports both clinical and basic HD research, aids families in coping with the multi-faceted problems presented by HD and educates the families, the public and health care professionals about Huntington’s Disease. Our HD families give a face to Huntington’s Disease; HDSA is its voice.

The HDLighthouse mission is to present and explain the latest research findings so that HD families can become proactive in their care, have hope for the future, and make good decisions in the present.

Our goal is to find answers for the numerous questions that pHDs and those who give care to pHDs face. Our tool is the Huntington's Disease Advocacy Center (HDAC) Web site. We discuss it's effect on those who've inherited the disease, and to try to supplement the information that your neurologist, physician, or psychiatrist provides to you regarding HD. We also provide a forum for those who have offered to share their experiences regarding issues that simply don't have "answers" but rather options to be considered such as feeding tubes, nursing home placement and the like.

CureHD.com

There are many touching stories and wishes for the cure on this website.  Add your own wish to the list.

Huntington's Disease Drug Works

HDDW's single goal: the earliest possible therapeutic benefit is correctly identified and used in individuals of this generation of Huntington's people.  Make sure to read about the trial agents.

National Research Roster for Huntington's Disease Patients and Families

The Roster is a unique nationwide information resource dedicated to assisting scientific research on Huntington's disease.  The Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research projects.

Folding@Home Distributed Computing

 

You can help to find a cure for many disease's (including HD) by simply running a piece of software. Folding@Home is a distributed computing project run by Stanford University - people from throughout the world download and run software to band together to make one of the largest supercomputers in the world. Every computer makes the project closer to our goals.  Use the team number 54404  when setting up the program.  Our team name is "HDSAOC".  We will be able to track how much progress we have made as a team.  Running this program makes you feel like you are really making a difference.